Cjd Foundation
Office phone +1 800-659-****
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Homepage http://www.cjdfoundation.org
LinkedIn Profile https://linkedin.com/company/the-cr***b-disease-f***
HQ Location
United States , Ohio, Fairlawn:3634 W Market St unit 110, Akron, OH 44333
The Creutzfeldt-Jakob Disease Foundation consists of members who are concerned about the complexity of issues surrounding this fatal brain disease. Our mission is to support families and loved ones touched by CJD. We carry out this mission by means of:
Publication of CJD Information pamphlet
Political and public policy advocacy
An Annual Family Conference
Family Workshops held around the country
Collaboration with the National Prion Disease Pathology Surveillance Center and the
Centers for Disease Control and Prevention
Monitoring and communicating by newsletter all of the current research and Foundation activities
Collaboration with international support groups from 10 other countries
PHILOSPHY
The Foundation's philosophy is to be proactive by establishing collaborations and linkages, communicating with family members, researchers, physicians and political representatives and informing the broader community about CJD.
POLICY
Our policy
Non-Profit Organization Management
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